Multiple Sclerose Research,
a necessary importance.

In May of 2010 my Bull terrier and I will go on a journey from Amsterdam to Rome by foot. 

We will go on a fundraising walk for research and treatment of childeren with Multiple Sclerose.
Seen from the fact that I have MS myself it is going to be a real adventure.
I have the fulliest trust and motivation to bring this journey to a good end.

So I look for people,companies and philanthropists, who want to support my initaitive and efforts with a donation to MS Research (The Netherlands) or if this is not possible, I urge you, please support your local MS foundation.

 

 

All donations will go directly to MS Research te Voorschoten

www.msresearch.nl
ING 49.41.716
Reference: Tommy & Jones

 

 Hi, I am Tommy Neimeijer and I have been diagnosed with MS for almost 6 years now and so I am in a position to say something about MS, but I will not say.  The only thing I want to say is that MS is a wrecker in the broadest sense of the word. Nothing else is as bad as when your own body turns into a prison with a life sentence. For some symptoms, they come and go.  My last big attack was 6 years ago, the same time I learned I had MS.

I also do not really use medication (well, sometimes a dash of Stroh rum in my coffee).
For all the people with progressive forms of MS, I have always felt very guilty because I can run and fly and be very active, but many of MS sufferers cannot.  For this reason, I am going on a fund raising walk from Amsterdam, the Netherlands to Rome, Italy to highlight the need for much more research and treatment of MS as a disease, in particular for children with MS. I hope many MS patients will walk with me in spirit because then I will not walk alone; we will all WALK together.

My actions are especially for children with MS.  This is the specific area of MS that is very close to my heart.  I want that any money that is donated to be spent on children with MS'.

Let's be honest, most of us, healthy or sick had a decent childhood, without too much limitation.  As an adult MS patient, I cannot imagine myself as a child with MS. Most of these children still try to lead normal lives and so they are my true HEROES. That is why I want donations to be spent on treatment and research for children with MS.

Aside from my intention to do this walk for children with MS, I would like to highlight the fact that I live in a country where MS research is completely reliant on gifts, donation and fund raising, generally.  On the other hand, the government does not give a penny for research or treatment of MS, while at the same time the government spends millions, maybe trillions, to  look at stars and galaxies that are so far away and probably does not even exist any more. But our brains exists now and needs help now.

Practically speaking, the MS sufferers exist; our brains exist and even the brain of the next person who will be diagnosed with MS next week or next year exist at this moment, unlike the existence of some galaxies and stars being heavily researched.  Admittedly, it is a bit strange in my book, and then I am only talking about the stars,

I also think that it is an underestimation of the number of people with MS. It is said that MS is a rare disease; I read or hear sometimes that 16,000 people in the Netherlands, more than 2 million worldwide, suffer with MS.  That's not a rare disease in my book!  Statistically, it means that 1 in 1000 in The Netherlands.  The way I view such statistics is that's half of a sport stadium. Worldwide, there are 125 sport stadiums. If you visualize it like that, then it is not a rare disease and that is why I cannot understand that the Dutch government does not give any money for research.

So donations for research and treatment must come from people with a philanthropic heart or from people that raise money because they are in one way or another touched by MS.

The fool also wants to sometimes contribute in his own way. This time I am the fool who is going to walk from Amsterdam to Rome, hoping that with this walk I can create a little bit more awareness that money for research is necessary

for a MS free world.